Privacy

A.    Visitor information

Vulvodynia Matters respects the privacy of website visitors and donors.

Information on individual site visitors and donors may be requested for purposes such as donation processing, and information requests. The information we may request includes name, street address city, state, zip code, telephone number, and email address.

We collect information about you only if you volunteer it. There are several ways you may volunteer information on the site. These include completing a survey, sending an email inquiry to us, contributing online, or registering for or participating in an online or in-person event. We may use this information to contact you for support or donation opportunities and to answer questions you submit to the site.

If you supply us with your postal or email address you may receive periodic mailings from us with information on new programs and services, donation opportunities or upcoming events.

Vulvodynia Matters sometimes adds contact information to our mailing list that is considered to be public information. For example, postal and email addresses of press contacts, government agencies, sponsors, healthcare providers, researchers, and other similar entities.

Donors and users can also write or email Vulvodynia Matters and request to be removed from our mailing list and/or to not receive fundraising letters and emails.

Vulvodynia Matters is the sole owner of and the only organization that uses the information collected on this site. We do not sell, share, trade, or rent this information to others under any circumstances. Vulvodynia Matters does not send donor mailings on behalf of other organizations.

B.     Public Forums                                                                                                           

We may offer chat rooms, message boards, bulletin boards, or similar public forums where you and other users of our Website can communicate. The protections described in this Privacy Policy do not apply when you provide information (including personal information) in connection with your use of these public forums. We may use personally identifiable and non-personal information about you to identify you with a posting in a public forum. Any information you share in a public forum is public information and may be seen or collected by anyone, including third parties that do not adhere to our Privacy Policy. We are not responsible for events arising from the distribution of any information you choose to publicly post or share through our Website.

C.  Keeping Your Information Secure                                                                 

We have implemented security measures we consider reasonable and appropriate to protect against the loss, misuse and alteration of the information under our control. Please be advised, however, that while we strive to protect your personally identifiable information and privacy, we cannot guarantee or warrant the security of any information you disclose or transmit to us online and are not responsible for the theft, destruction, or inadvertent disclosure of your personally identifiable information. In the unfortunate event that your “personally identifiable information” (as the term or similar terms are defined by any applicable law requiring notice upon a security breach) is compromised, we may notify you by e-mail (at our sole and absolute discretion) to the last e-mail address you have provided us in the most expedient time reasonable under the circumstances; provided, however, delays in notification may occur while we take necessary measures to determine the scope of the breach and restore reasonable integrity to the system as well as for the legitimate needs of law enforcement if notification would impede a criminal investigation. From time to time we evaluate new technology for protecting information, and when appropriate, we upgrade our information         security systems.

D.     Other Sites; Links                                                                                       

Our Website may link to or contain links to other third party Websites that we do not control or maintain, such as in connection with purchasing products referenced on our Website and banner advertisements. We are not responsible for the privacy practices employed by any third party Website. We encourage you to note when you leave our Website and to read the privacy statements of all third party Websites before submitting any personally identifiable information.

E.     Contact and Opt-Out Information                                                               

You may contact us as at contact@v-matters.org  if: (a) you have questions or comments about our Privacy Policy; (b) wish to make corrections to any personally identifiable information you have provided; (c) want to opt-out from receiving future commercial correspondence, including emails, from us; or (d) wish to withdraw your consent to any permission you may have granted to share your personally identifiable information with others. We will respond to your request and, if applicable and appropriate, make the requested change in our active databases as soon as reasonably practicable. Please note that we may not be able to fulfill certain requests while allowing you access to certain benefits and features of our Website.

F.      Sole Statement                                                                                         

This Privacy Policy as posted on this Website is the sole statement of our privacy policy with respect to this Website, and no summary, modification, restatement or other version thereof, or other privacy statement or policy, in any form, is valid unless we post a new or revised policy to the Website.